Advocacy Archives - Page 2 of 2

Advocacy

05/17/2022

Ashley Baker: Advocate, Artist, and Lyme Patient

Ashley Baker is a Lyme patient from Clear Spring, Maryland. During her childhood, she spent a lot of time in the woods and parks around her home, including the C&O Canal. She grew up with no concept of Lyme disease or effective tick bite prevention measures. She has since become another person who faces chronic symptoms. However, she has worked hard to overcome her illness and change the narrative surrounding the disease. This is her story.

Advocacy

05/04/2022

Reviewing Current Lyme Legislation

Project Lyme compiled this resource to further educate advocates about the types of legislation that have been passed at both federal and state levels. This resource will serve to showcase legislation that has been successful, so that they may leverage this information to help pass similar bills in other states.

Advocacy

02/04/2022

Become a Lyme Advocate, Register for the 2022 Lyme Fly-In

The 3rd annual Lyme Fly-In provides a unique opportunity to get face time with legislators and their staff. With over 200 people already registered, you can join a group of dedicated advocates requesting more federal funding for Lyme disease research.

Advocacy

09/20/2021

TBDWG: Call for Public Comment

The U.S. Department of Health and Human Services recently unveiled the new members of the 2021-2022 Tick-Borne Disease Working Group (TBDWG). So, what can we expect this term? Project Lyme interviewed the co-chairs, Holiday Goodreau, Executive Director of the LivLyme Foundation, and Dr. Linden Hu, Professor of Microbiology and Medicine at Tufts University, to find out. Ms. Goodreau and Dr. Hu generously shared their perspectives and goals to improve tick-borne disease patient care in our new blog post.

Advocacy

06/23/2021

The First Epidemic in an Era of Climate Change

Center for Lyme Action hosted their 2nd major event of the year. Featuring Congressional Representatives, Federal employees and renowned scientists, CLA educated the public about major issues and raised awareness about the growing prevalence of tick borne disease. This blog pulls key takeaways from the event and focuses on answering the central question: Is Lyme Disease the First Epidemic of Climate Change?

Advocacy

02/25/2021

Lyme Advocates Sound the Alarm on a Growing Health Crisis

The 2nd annual Lyme Fly-In was held on Wednesday, February 24th. Project Lyme recaps the event by outlining funding requests, as well as sharing quips from congressional reps, staffers, and the events organizers.

Advocacy

01/27/2021

How Long COVID can lead to acceptance of Chronic Lyme

This letter is in response to a recent article from The New York Times that draws striking similarities between long COVID and other persistent diseases, particularly ME/CFS and chronic Lyme.