Support Groups
Lyme disease can impact all aspects of your life. Joining a community of individuals going through the same struggles can help make your journey to recovery easier. 
What is a Support Group?
Support groups are a safe space to connect with people who understand what you’re going through. They take many forms, especially at a time when people can easily from anywhere.
Meet-ups are one option to meet people. They can take place via Zoom and other video chat services or in person. Meet-ups provide an intimate space to ask questions, share stories, and build face-to-face community with fellow patients.
There are also Facebook groups, which offer an educational approach to community and don’t require you to attend any meetings. These groups post informative articles relative to the patients and answer questions about specific topics such as doctor recommendations, experiences with treatment protocols, and more!
Below, we have listed the most well-known support groups for you to explore.
Virtual Meet-Ups
Mothers Against Lyme
A Project Lyme initiative, this community is empowering women who are parents of sick children or are sick themselves. They discuss a common theme at each meeting, share stories of struggles caused by Lyme, and provide advice. Register via their event page.
NatCap Lyme
A network of NatCapLyme support groups in the District of Columbia, Virginia, and Maryland offers meetings, events, and education. Support groups vary in their focus with emphasis on support, education, and social gatherings. You can find a state-by-state list on their website.
Illinois Lyme Association
ILA offers support to one another and features a range of speakers, including health care professionals and other practitioners, leaving time for your questions and answers. The meetings are intended for support and educational purposes only, so no personal medical advice will be given. Learn more on their website.
Generation Lyme
Generation Lyme is a community built to empower people facing Lyme disease. They provide virtual Meet-Ups where patients and supporters of all ages and backgrounds can feel supported, connected, and inspired. Gen Lyme Meet-Ups occur almost every day of the week, and there is no pressure to speak or appear on camera. Just being with people who understand can make all the difference. Learn more on their website.
San Diego Lyme Alliance
SDLA hosts a monthly Empowerment Circle that takes place via Zoom. This is an interactive support group that begins with a guided meditation or somatic exercise. Afterward, they discuss the month’s focus questions. Learn more here.
Lyme Disease Resource Center
LDRC offers monthly support groups that function as a confidential space to connect and share. More information is on their website.
Rise Above Lyme
Rise Above Lyme is an initiative dedicated to helping those suffering from Lyme disease and its related co-infections. Through our online support groups and compilation of verified resources, we aim to provide those suffering with hope, comfort, and advocacy. Learn more here!
Facebook Groups
Lyme Disease UK Online Community
This is a closed Facebook group established by the registered charity Lyme Disease UK. For any UK-based patients, this group will offer the best space for peer discussion and emotional support for patients in the country. Learn more here.
Florida Lyme Friends
Lyme Disease Support
PARENTS of CHILDREN with PANDAS/PANS/LYME/TICK-BORNE DISEASES
This group is a safe place for parents to come for support & information for their children afflicted with PANDAS/PANS and/or Lyme & Tick-Borne Diseases. Find out more information here.
Parents of Kids With Lyme
Babesia Buddies
This group is not for patients who are dealing with Babesia or their caregivers. Request access here.
Beating Bartonella
Lyme Disease and Co-Infections
This group is devoted to sharing information with and supporting those whose lives have been touched by Lyme and its Co-Infections. They find Burrascano protocols and the use of antibiotics to be a solid foundation but share their experiences with alternative therapies. Join the group here.
Healing Mold, Lyme, CIRS, MCS and Biotoxin Illness Support
Lyme Carditis
S.O.T. for Lyme, EBV & Co-infections
Disulfiram or Azlocillin for Lyme Support Group
Lyme Success Stories
In Person Meet-Ups
There are not many in-person support group meetings for Lyme patients at this time. While in-person events such as speaker series or fundraisers continue to occur, the support part seems to have migrated mostly virtual. Do you have a Lyme support group meeting in person? If so, reach out and we will happily include it on our website!
