February 19, 2025
Lyme Fly-In
Center for Lyme Action will host its annual Virtual Fly-In to connect advocates with their Members of Congress. Last year 350 advocates registered for more than 200 meetings with Congress Members.
Tick-Borne Diseases & Associated Illnesses: National Community Engagement Initiative
About The Event
Tick-borne diseases are a serious public health problem. Join us at one of our engagement meetings to
- Learn about relevant initiatives and developments
- Hear updates from federal agencies
- Provide input about patient concerns and priorities
- Audience: The general public; patients, caregivers, family members, and advocates; clinicians and healthcare providers; researchers; funding organizations
Virtual Community Engagement Sessions
Three virtual sessions will cover the topics of mental health, diagnostics, and treatment. These topics chosen were by the public at the San Francisco meeting on June 11, 2024.
Session 1: Mental Health and Neurological Effects
When: October 24, 2024
Time: 1:00 pm – 4:30 pm Eastern
Where: Virtual
Meeting Goal:
The purpose of this meeting is to engage the public—patients, caregivers, and healthcare providers, in particular—in an educational and informative session on the mental health and neurological effects of tick-borne diseases and associated illnesses and conditions (TBDAIC). Presentations by clinicians and researchers will provide insights into these complex and multi-faceted topics.
Meeting Objectives:
- Validate the patient and caregiver experience.
- Educate the audience about the nuanced mental health challenges of TBDAIC.
- Describe potential neurological effects of certain TBDAIC.
- Provide resources for patients and caregivers seeking help with the mental health effects of TBDAIC.
- Furnish information to help healthcare providers recognize, treat, and proactively address the mental health effects of TBDAIC in their patients.
Related Upcoming Events
November 14, 2024
Creating Change: Lyme Disease Advocacy For Patients
The goal of this webinar is to teach patients how to effectively advocate for change on the Federal, State, and local levels of government. Our presenters will discuss multiple topics including but not limited to: ways to engage with political representatives through letter writing, proclamation requests, how to participate in the upcoming Center for Lyme Action Fly-In and how to advocate for change hyper-locally, such as planning 5k's, social media fundraisers.
November 07, 2024
Men’s Meet-Up
Fathers meet-ups occur a couple of times a month and are geared towards fathers raising children with Lyme, or fathers with Lyme themselves. It serves as a support group where you will discuss a common theme each meeting, share stories of your own struggle caused by Lyme, as well as hear advice from other fathers going through the same things as you. Join us by registering through the webpage!
