Treatment
Notable Clinical Studies and Research Programs
Ongoing studies help research evolve. You can contribute to research by signing up as a volunteer in clinical trials or donating blood, urine, or tissue samples to a bio bank. Below is a list of resources that are seeking patient help in their research efforts.
NIAID-Supported Lyme Disease Trial
The National Institute of Allergy and Infectious Diseases (NIAID) conducts and supports clinical trials to improve diagnosis, treatment, and prevention of Lyme disease. These studies are often held at the NIH Clinical Center in Bethesda, Maryland.
Details: Trials focus on various aspects of Lyme disease, including diagnostics and treatment efficacy. Some studies offer compensation and cover travel costs, with no cost for study-related care.
How to Participate: Contact the Lyme Disease Study Team at (301) 435-7244 or email LymeDxStudies@niaid.nih.gov. You can also call 1-800-411-1222 or visit their website for more information.
Johns Hopkins Lyme Disease Research Center
The center conducts the SLICE (Studies of Lyme Disease Immunology and Clinical Events) studies, exploring immune responses, persistent symptoms, and treatment options.
Current Study Example: A pilot study is investigating tetracycline tolerability in patients with post-treatment Lyme disease symptoms, focusing on fatigue reduction.
Eligibility: Open to those recently diagnosed, with persistent symptoms, or healthy controls.
How to Join: Visit hopkinslyme.org for eligibility details and contact information.
Columbia University Clinical Trials Network (CTN)
Funded by the Steven and Alexandra Cohen Foundation, this network supports multi-site clinical trials and pilot studies for Lyme and tick-borne diseases.
Focus: Improving diagnostics and treatments, including a patient registry to connect individuals with studies.
Contact: Check columbia-lyme.org for ongoing studies and or visit their website to sign-up for open trials.
Bay Area Lyme Foundation Bio Bank
Project Lyme is a proud partner and funder of Bay Area Lyme Foundation. Their biobank stores human biological samples like blood and tissue for use in future research. Lyme Disease Biobank was created because medical researchers were unable to access the human blood, urine, and tissue samples they needed for their research. Potential donors can register for the Lyme Disease Biobank online here or by calling NDRI at 800-222-NDRI (6374), Option 5.
MyLymeData
MyLymeData is a patient-powered Lyme disease research project of LymeDisease.org that uses big data research tools that allow patients to quickly and privately pool their data to determine which treatments work best. Click here to register for the program!
