From the latest headlines to community events, keep your finger on the pulse of the Lyme world. Learn about groundbreaking research and what’s new in patient advocacy. Stay informed to make the best possible health decisions for yourself and the people you care about.
Advocacy
11/16/2022
Deborah Findley’s son, Andrew, grew up with serious health problems, including autism, Lyme disease, and other conditions. When he turned 18, Deb and her husband attempted to get a conservatorship, but to their surprise, California’s Department of Developmental Services filed a competing request.
Advocacy
10/28/2022
Mindy White is an independent singer/songwriter from Nashville, TN. She suffers from Chronic Lyme Disease and loves finding inspirational stories of others persevering through their illnesses to do what brings them joy. She has lived with CLD for 5 years now, which has brought on a slew of other illnesses including POTS, Fibromyalgia, Neuropathy, and Hypothyroidism. Prior to that, she was a successful recording and full-time touring artist.
Advocacy
09/28/2022
Project Lyme is sponsoring a video contest to provide patients with a platform to tell the world about Lyme disease. The theme is “day in the life”. You are encouraged to share how Lyme disease impacts your everyday life in a 15-30 second video that could be featured in our online campaign, with winning videos decided via a vote on our Instagram page. The top-voted submissions will receive a prize.
In the Media
09/21/2022
Harvard conducted an online survey to gauge what the public does and does not know about Lyme disease and ways to prevent it, also asking questions to see whether they act on that knowledge. They received 4,099 responses.
Education
09/07/2022
Project Lyme believes in the power of community and storytelling to raise awareness about tick-borne diseases. While sharing your story can be helpful for the general public to better understand your struggle, it can also be a great way to begin the healing process. More specifically, we encourage you to leverage art to convey the deeper meaning words cannot always touch. We have compiled a gallery with several pieces of impactful artistic expression with the hope it will reach outside the community to bring understanding, and inside the community to bring hope and healing.
Advocacy
09/07/2022
On Saturday, September 24th, 2022, Generation Lyme will host the second annual Generation Lyme Day, an all-day virtual event honoring everyone whose lives are impacted by Lyme disease. We will celebrate each other for who we are, far beyond our illness, and recognize wherever we are in our journeys.
Education
08/30/2022
Methylene blue was originally synthesized in 1876 and used as an antimalarial drug until it fell out of favor with the rise of quinine. This synthetic dye is named for its ability to stain tissue and urine a dark blue hue. Cut to today, and methylene blue has emerged as a promising treatment for Lyme disease and Bartonella, a common tick-borne co-infection.
Education
07/26/2022
Rates of Lyme and other tick-borne diseases have been steadily rising with estimates, with the most recent estimates saying 14% of the world's population. At the same time, the prevalence of Autism spectrum disorder is currently at 3.49% among children and adolescents in the United States.
Education
07/22/2022
Lyme used to be viewed as endemic to only a handful of regions, but experts estimate that about 14% of the world’s population has been diagnosed with the disease. Read more about the global prevalence of tick-borne disease and what Project Lyme is doing about it.