News & Blogs

Education

03/14/2023

Delayed Diagnosis: The Cost of Missing Lyme Disease

At 17 years old, Grace Burns started having episodes where her legs grew numb and she lost consciousness. She developed other symptoms, including fevers, arthritis, migraines, nausea, nerve and muscle problems, and brain fog. After 3 years of seeing many doctors who told her that her symptoms were “just in her head,” Grace finally saw Lyme expert Dr. Steven Phillips, who diagnosed her with neurological Lyme disease plus co-infections. Now on her path to recovery, she is spreading awareness about the delay in answers and why the medical system needs to change.

Education

03/09/2023

Reframing How to Live With Chronic Lyme Disease

Most people recognize Bob Forster as an adventurer who posts on Facebook about his experiences mountaineering and back-country skiing in exotic places from Alaska and Canada to Argentina, Russia, Japan, Europe, and beyond. These outdoor activities are so physically demanding that those who don’t know Bob and see his updates are shocked to find out that he has chronic Lyme disease, often wondering, “How could that person be sick?”

Education

02/13/2023

Nowhere Land: Photographing the Life of Lyme Patients

Art is a critical storytelling device. Patients can use art to share experiences in a unique way, opening a door to understanding for non-patients. Jiatong Lu, a fine artist based in New York City, has accomplished that with her project “Nowhere Land”. She uses photography to capture the realities of Lyme disease and is sharing them to raise awareness.

Education

01/04/2023

Whole-Body Hyperthermia for Treating Lyme Disease

Whole-body hyperthermia is a medically induced state used to treat Lyme disease. This article serves to answer questions from our patient community about this therapy. This article does not serve as an endorsement. You should always consult with a medical professional before moving forward with a new treatment.

Education

12/08/2022

Considering Dapsone For Persistent Lyme

Dapsone is a sulfur-based drug originally used to treat leprosy. Its anti-inflammatory qualities and ability to attack persister cells make it a good option for treating persistent Lyme disease.

Education

11/30/2022

Low-Histamine Diet

A low-histamine diet has benefits for many people, given its reliance on fresh, natural foods. However, it also directly applies to tick-borne disease patients suffering from Borrelia burgdorferi and other co-infections. Read this article to learn more about the benefits of this diet.

Education

11/23/2022

Supportive Oligonucleotide Therapy (SOT) for Lyme

Supportive Oligonucleotide Therapy (SOT) for Lyme Disease is a cutting-edge treatment for infections, including Borrelia Burgdorferi. This article serves to educate and help you decide if it may be right for you.

Advocacy

11/16/2022

End Conservatorship of Disabled Lyme Patient

Deborah Findley’s son, Andrew, grew up with serious health problems, including autism, Lyme disease, and other conditions. When he turned 18, Deb and her husband attempted to get a conservatorship, but to their surprise, California’s Department of Developmental Services filed a competing request.

Advocacy

10/28/2022

“Ghost” and Mindy White’s Chronic Lyme Story

Mindy White is an independent singer/songwriter from Nashville, TN. She suffers from Chronic Lyme Disease and loves finding inspirational stories of others persevering through their illnesses to do what brings them joy. She has lived with CLD for 5 years now, which has brought on a slew of other illnesses including POTS, Fibromyalgia, Neuropathy, and Hypothyroidism. Prior to that, she was a successful recording and full-time touring artist.