From the latest headlines to community events, keep your finger on the pulse of the Lyme world. Learn about groundbreaking research and what’s new in patient advocacy. Stay informed to make the best possible health decisions for yourself and the people you care about.
Advocacy
05/17/2023
For Lyme Disease Awareness Month, Project Lyme asked our community to honor those Lyme and tick-borne disease doctors who are committed to helping patients recover, sometimes putting their own reputations at risk in the process. This blog answers the question, who is your Lyme hero?
Education
05/09/2023
Project Lyme recently joined Backpacker Radio to discuss all things deer ticks and Lyme disease.
Education
04/18/2023
Project Lyme recently chatted with Ashley Baker to get a patient’s perspective on medical gaslighting. Ashley is a passionate artist, Lyme disease advocate, member of Project Lyme’s Junior Board, and also one of the stories featured in the new Lyme documentary I’m Not Crazy, I’m Sick.
Education
04/03/2023
Isabel Rose is a recording artist, author, and mother whose personal experiences with Lyme disease have motivated her to become an advocate for tick-borne disease awareness and education. She has been a Board Member of Project Lyme since 2019. Currently, Isabel runs Mothers Against Lyme, an initiative of Project Lyme, which offers support groups for mothers in need with a focus on congenital and pediatric Lyme disease.
Education
03/14/2023
At 17 years old, Grace Burns started having episodes where her legs grew numb and she lost consciousness. She developed other symptoms, including fevers, arthritis, migraines, nausea, nerve and muscle problems, and brain fog. After 3 years of seeing many doctors who told her that her symptoms were “just in her head,” Grace finally saw Lyme expert Dr. Steven Phillips, who diagnosed her with neurological Lyme disease plus co-infections. Now on her path to recovery, she is spreading awareness about the delay in answers and why the medical system needs to change.
Education
03/09/2023
Most people recognize Bob Forster as an adventurer who posts on Facebook about his experiences mountaineering and back-country skiing in exotic places from Alaska and Canada to Argentina, Russia, Japan, Europe, and beyond. These outdoor activities are so physically demanding that those who don’t know Bob and see his updates are shocked to find out that he has chronic Lyme disease, often wondering, “How could that person be sick?”
Education
02/13/2023
Art is a critical storytelling device. Patients can use art to share experiences in a unique way, opening a door to understanding for non-patients. Jiatong Lu, a fine artist based in New York City, has accomplished that with her project “Nowhere Land”. She uses photography to capture the realities of Lyme disease and is sharing them to raise awareness.
Education
01/04/2023
Whole-body hyperthermia is a medically induced state used to treat Lyme disease. This article serves to answer questions from our patient community about this therapy. This article does not serve as an endorsement. You should always consult with a medical professional before moving forward with a new treatment.
Education
12/08/2022
Dapsone is a sulfur-based drug originally used to treat leprosy. Its anti-inflammatory qualities and ability to attack persister cells make it a good option for treating persistent Lyme disease.