From the latest headlines to community events, keep your finger on the pulse of the Lyme world. Learn about groundbreaking research and what’s new in patient advocacy. Stay informed to make the best possible health decisions for yourself and the people you care about.
In the Media
07/12/2021
Project Lyme has been an Insect Shield partner since their founding in 2016. We recently interviewed Noah Johnston, Administrative Director of Project Lyme, to get an overview of their programs and initiatives and find out what they are doing today.
Education
07/07/2021
Baltimore City Scout Troop 5 met with Project Lyme to learn about tick prevention strategies. Project Lyme presented an educational workshop geared at raising awareness of the realities of Lyme disease. The debilitating and chronic nature of Lyme disease make it so important to take steps to be safe. Troop 5 was inspired to take the information they learned and apply it. After winter subsided, they decided to create a short film for Project Lyme. This blog chronicles the film and provides a link to watch.
Education
06/25/2021
Kenzie Vath felt a shift in her body when she was about 10 years old. Since then, she has gone on a lifelong journey towards recovery. Being sick day in and day out is not easy, but after years of searching Kenzie has found a way to live with Lyme. In this blog she writes about finding the right treatment methods and support system and goes on to describe she works to help others do the same.
Advocacy
06/23/2021
Center for Lyme Action hosted their 2nd major event of the year. Featuring Congressional Representatives, Federal employees and renowned scientists, CLA educated the public about major issues and raised awareness about the growing prevalence of tick borne disease. This blog pulls key takeaways from the event and focuses on answering the central question: Is Lyme Disease the First Epidemic of Climate Change?
Education
06/21/2021
Gus Thalasinos describes the genesis of the Lyme Persists initiative, and showcases why is it imperative to educate yourself once becoming sick. He talks about one of the biggest problems facing patients, which is that many people still doubt Lyme can be chronic, doctors included. This is why he combed through a literal mountain of legitimate, peer- reviewed studies out there supporting it to set things straight. Learn more about his story and what made him want to work with Project Lyme to make a difference with Lyme Persists.
Science
06/14/2021
Have you heard of a condition called autoimmune encephalitis or “brain on fire”? It’s a swelling of the brain that can present with severe physical and mental symptoms, and it can be caused by tick-borne pathogens, including bartonella and mycoplasma. Dr. Dan Kinderlehrer recently conducted a study of 10 randomly selected adolescent patients with psychiatric symptoms so severe that they couldn’t function at school or at home to see if there was a correlation with tick-borne diseases.
Education
06/11/2021
Like many chronic illnesses, persistent Lyme disease can wreak havoc on your hormones, resulting in loss of libido and sexual dysfunction, among other painful symptoms. This can strain relationships just at a time when partners need each other’s support the most. Dr. Joseph Trunzo, a psychologist and the author of Living Beyond Lyme: Reclaim Your Life from Lyme Disease and Chronic Illness (Changemakers Books, 2018), spoke with Project Lyme about how individuals can preserve intimacy in their relationship while coping with Lyme disease or chronic illness.
In the Media
06/09/2021
“When I became severely ill in 2010, it took ten doctors and multiple false negative test results before being diagnosed with Lyme disease and the co-infection babesia,” said New York advocate and Project Lyme Executive Committee Chairman David Roth. “There are enormous gaps in our understanding of the pathology of these diseases and their treatment, and there is a tremendous need for better diagnostic tests. I want to thank Senator Gillibrand for her leadership on this issue and for consistently fighting for increased funding for research of these diseases.”
Science
06/02/2021
Dr. Dan Kinderlehrer leverages patient case studies to examine why Lyme disease can cause mental illness, specifically eating disorders. With anorexia nervosa becoming increasingly common, it is important to understand the warning signs and take action.