News & Blogs

From the latest headlines to community events, keep your finger on the pulse of the Lyme world. Learn about groundbreaking research and what’s new in patient advocacy. Stay informed to make the best possible health decisions for yourself and the people you care about.

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Advocacy

09/20/2021

TBDWG: Call for Public Comment

The U.S. Department of Health and Human Services recently unveiled the new members of the 2021-2022 Tick-Borne Disease Working Group (TBDWG). So, what can we expect this term? Project Lyme interviewed the co-chairs, Holiday Goodreau, Executive Director of the LivLyme Foundation, and Dr. Linden Hu, Professor of Microbiology and Medicine at Tufts University, to find out. Ms. Goodreau and Dr. Hu generously shared their perspectives and goals to improve tick-borne disease patient care in our new blog post.

In the Media

09/20/2021

Public Service Announcement

Project Lyme is excited to announce our new public service announcements (PSAs). This multi-platform campaign spotlights patients’ firsthand experiences to educate the public about the rising threat of Lyme disease.

In the Media

09/17/2021

What Lurks in the Woods

Life was going well for Nicole Bell and her husband Russ, both successful engineers and entrepreneurs… until Russ started experiencing symptoms of cognitive decline. They visited doctor after doctor and were told it was Alzheimer’s disease, but the root cause turned out to be something they never expected—tick-borne disease. In her soon-to-be-released memoir What Lurks in the Woods (October 2021), Nicole describes her harrowing investigation into her husband’s mysterious illness in hopes that it will help others who are dealing with bizarre chronic symptoms to find the cause before it’s too late. Nicole graciously sat down for a (virtual) interview with Project Lyme about her book and her heartfelt message to the chronic illness community.

Science

09/14/2021

Cardiopulmonary Exercise Testing for Determining Disability in Lyme Disease

Determining eligibility for disability insurance claims can be an extremely hard task, especially when insurance companies are incentivized not to pay. Cardiopulmonary exercise testing (CPET), specifically 2-day CPET, is a possible answer for patients to scientifically showcase how fatigue impacts their ability to work. If you need help solidifying your claims, this blog may contain the answers you are seeking.

Science

09/07/2021

Epidemics of the 21st Century

Dr. Kinderlehrer is back with a new blog addressing the rise in epidemics around the world. He analyzes how they relate to chronic illness and mental health disorders, specifically Lyme and other tick-borne diseases. Discussing flaws in our current health systems, he provides insight on how he foresees changes being made to better assist patient populations.

Education

08/31/2021

LYME WATCH: “Lyme Disease: What You Need to Know”

In the second installation of LYME WATCH, Jason Teich and Davia Sills address missteps of information in the media. Lyme disease is constantly downplayed in terms of where you can get it, and how quickly you can get it. Additionally, tests are still suspect and so are treatment protocols assigned by certain non-governmental organizations such as the IDSA. The more you know about misinterpreted information, the better you will be able to protect yourself.

Science

07/21/2021

Lyme Disease, Kids and Mental Illness: Part II

In this second installation, Dr. Kinderlehrer draws conclusions on how the increasing prevalence of mental health disorders in children and adolescents is linked to tick-borne disease.

Science

07/21/2021

Flow State: What Is It and How Can It Help My Lyme Disease?

Celine Tien is the founder of Flowly: relaxation training, an NIH-backed mobile platform that combines Virtual Reality and biofeedback training to help individuals transition from pain state to flow state. Tien is also Principal Investigator on NIDA-backed clinical trials at the University of Pittsburgh Medical Center and USC. In this article, Celine explains flow state, its benefits, and how to achieve it.

In the Media

07/15/2021

Lawmakers Push for Lyme Disease Research as Tick Population Climbs

Changing climate conditions help drive up number of cases, as infecting insects thrive in warm, humid environments. Researchers and advocates say the lack of funding for tick-borne diseases contributes to major knowledge gaps surrounding the disease.

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