Advocacy
09/05/2023
We advise all patients and parents to look into financial assistance programs, including our partner LymeLight Foundation. This blog serves to highlight the amazing work they do serving patients and encourages you to contribute to help grow the grant program.
Advocacy
05/17/2023
For Lyme Disease Awareness Month, Project Lyme asked our community to honor those Lyme and tick-borne disease doctors who are committed to helping patients recover, sometimes putting their own reputations at risk in the process. This blog answers the question, who is your Lyme hero?
Advocacy
11/16/2022
Deborah Findley’s son, Andrew, grew up with serious health problems, including autism, Lyme disease, and other conditions. When he turned 18, Deb and her husband attempted to get a conservatorship, but to their surprise, California’s Department of Developmental Services filed a competing request.
Advocacy
10/28/2022
Mindy White is an independent singer/songwriter from Nashville, TN. She suffers from Chronic Lyme Disease and loves finding inspirational stories of others persevering through their illnesses to do what brings them joy. She has lived with CLD for 5 years now, which has brought on a slew of other illnesses including POTS, Fibromyalgia, Neuropathy, and Hypothyroidism. Prior to that, she was a successful recording and full-time touring artist.
Advocacy
09/28/2022
Project Lyme is sponsoring a video contest to provide patients with a platform to tell the world about Lyme disease. The theme is “day in the life”. You are encouraged to share how Lyme disease impacts your everyday life in a 15-30 second video that could be featured in our online campaign, with winning videos decided via a vote on our Instagram page. The top-voted submissions will receive a prize.
Advocacy
09/07/2022
On Saturday, September 24th, 2022, Generation Lyme will host the second annual Generation Lyme Day, an all-day virtual event honoring everyone whose lives are impacted by Lyme disease. We will celebrate each other for who we are, far beyond our illness, and recognize wherever we are in our journeys.
Advocacy
05/17/2022
Ashley Baker is a Lyme patient from Clear Spring, Maryland. During her childhood, she spent a lot of time in the woods and parks around her home, including the C&O Canal. She grew up with no concept of Lyme disease or effective tick bite prevention measures. She has since become another person who faces chronic symptoms. However, she has worked hard to overcome her illness and change the narrative surrounding the disease. This is her story.
Advocacy
05/04/2022
Project Lyme compiled this resource to further educate advocates about the types of legislation that have been passed at both federal and state levels. This resource will serve to showcase legislation that has been successful, so that they may leverage this information to help pass similar bills in other states.
Advocacy
02/04/2022
The 3rd annual Lyme Fly-In provides a unique opportunity to get face time with legislators and their staff. With over 200 people already registered, you can join a group of dedicated advocates requesting more federal funding for Lyme disease research.