Advocacy

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Advocacy

03/19/2025

Striking Out Lyme: A Pitcher’s Mission to Raise Awareness

Growing up in Ocala, Florida, Kolten started playing baseball when he was just five years old and never looked back. But beyond baseball, there’s another battle that has deeply affected his family—one that has nothing to do with sports and everything to do with health. Kolten’s mom, Bonnie, has been fighting Lyme disease since he was in middle school. Before she got sick, neither of them had even heard of Lyme disease. That all changed when she started experiencing severe symptoms that no one could seem to explain.

Advocacy

01/02/2025

Art Therapy Gallery January 2025

Project Lyme believes in the power of community and storytelling to raise awareness about tick-borne diseases. While sharing your story can be helpful for the general public to better understand your struggle, it can also be a great way to begin the healing process. More specifically, we encourage you to leverage art to convey the deeper meaning words cannot always touch. We have compiled a gallery with several pieces of impactful artistic expression with the hope it will reach outside the community to bring understanding, and inside the community to bring hope and healing.

Advocacy

07/29/2024

Sen. Gillibrand announces plan to fight against Lyme Disease

Yesterday, U.S. Senator Kirsten Gillibrand, alongside Project Lyme, held a press conference at the Quogue Wildlife Refuge to advocate for increased federal funding for Lyme Disease research. Suffolk County had the highest number of Lyme disease cases in the country between 2019 and 2022, and New York was the number one state for reported cases of Lyme disease in 2022. These statistics emphasize the urgent need for increased funding and research to better understand, treat, and ultimately find a cure for this devastating illness.

Advocacy

10/24/2023

Why Congress Must Enact Medical Insurance Coverage Laws for Lyme Disease

This article provides an overview of Lyme disease and its prevalence in the United States. Despite scientific evidence showing the infection can persist long after initial treatment, most insurance companies restrict access to treatment beyond twenty-eight days, leaving patients to bear much of the financial burden. Barrett argues that the existing approach to addressing Lyme disease is insufficient; therefore, Congress must enact legislation to change this.