Advocacy Archives - Project Lyme

Advocacy

07/29/2024

Sen. Gillibrand announces plan to fight against Lyme Disease

Yesterday, U.S. Senator Kirsten Gillibrand, alongside Project Lyme, held a press conference at the Quogue Wildlife Refuge to advocate for increased federal funding for Lyme Disease research. Suffolk County had the highest number of Lyme disease cases in the country between 2019 and 2022, and New York was the number one state for reported cases of Lyme disease in 2022. These statistics emphasize the urgent need for increased funding and research to better understand, treat, and ultimately find a cure for this devastating illness.

Advocacy

05/24/2024

How to Be a Lyme Disease Advocate

It’s vital to keep spreading awareness and educating the public about Lyme and other tick-borne illnesses all year round. There are simple but meaningful ways that anyone can advocate for Lyme disease no matter what time of year it is. Read to learn more!

Advocacy

10/24/2023

Why Congress Must Enact Medical Insurance Coverage Laws for Lyme Disease

This article provides an overview of Lyme disease and its prevalence in the United States. Despite scientific evidence showing the infection can persist long after initial treatment, most insurance companies restrict access to treatment beyond twenty-eight days, leaving patients to bear much of the financial burden. Barrett argues that the existing approach to addressing Lyme disease is insufficient; therefore, Congress must enact legislation to change this.

Advocacy

09/05/2023

Treatment Grants: A Path Towards Hope

We advise all patients and parents to look into financial assistance programs, including our partner LymeLight Foundation. This blog serves to highlight the amazing work they do serving patients and encourages you to contribute to help grow the grant program.

Advocacy

05/17/2023

Who’s Your Lyme Hero?

For Lyme Disease Awareness Month, Project Lyme asked our community to honor those Lyme and tick-borne disease doctors who are committed to helping patients recover, sometimes putting their own reputations at risk in the process. This blog answers the question, who is your Lyme hero?

Advocacy

11/16/2022

End Conservatorship of Disabled Lyme Patient

Deborah Findley’s son, Andrew, grew up with serious health problems, including autism, Lyme disease, and other conditions. When he turned 18, Deb and her husband attempted to get a conservatorship, but to their surprise, California’s Department of Developmental Services filed a competing request.

Advocacy

10/28/2022

“Ghost” and Mindy White’s Chronic Lyme Story

Mindy White is an independent singer/songwriter from Nashville, TN. She suffers from Chronic Lyme Disease and loves finding inspirational stories of others persevering through their illnesses to do what brings them joy. She has lived with CLD for 5 years now, which has brought on a slew of other illnesses including POTS, Fibromyalgia, Neuropathy, and Hypothyroidism. Prior to that, she was a successful recording and full-time touring artist.

Advocacy

09/28/2022

Project Lyme Video Challenge Official Rules

Project Lyme is sponsoring a video contest to provide patients with a platform to tell the world about Lyme disease. The theme is “day in the life”. You are encouraged to share how Lyme disease impacts your everyday life in a 15-30 second video that could be featured in our online campaign, with winning videos decided via a vote on our Instagram page. The top-voted submissions will receive a prize.

Advocacy

09/07/2022

Celebrate Generation Lyme Day on September 24th!

On Saturday, September 24th, 2022, Generation Lyme will host the second annual Generation Lyme Day, an all-day virtual event honoring everyone whose lives are impacted by Lyme disease. We will celebrate each other for who we are, far beyond our illness, and recognize wherever we are in our journeys.