Advocacy
05/01/2025
Advocacy
Connect with Lyme
Advocacy
05/01/2025
From the Desk of Ali Moresco
Advocacy
03/19/2025
Striking Out Lyme: A Pitcher’s Mission to Raise Awareness
Growing up in Ocala, Florida, Kolten started playing baseball when he was just five years old and never looked back. But beyond baseball, there’s another battle that has deeply affected his family—one that has nothing to do with sports and everything to do with health. Kolten’s mom, Bonnie, has been fighting Lyme disease since he was in middle school. Before she got sick, neither of them had even heard of Lyme disease. That all changed when she started experiencing severe symptoms that no one could seem to explain.
Advocacy
03/11/2025
Turning Pain into Purpose: How Project Lyme’s Emerging Leaders Fight for Survival and Hope
In a recent episode of the Love, Hope, Lyme podcast, Ashley Baker and Maria Johnson, members of the Emerging Leaders Board for Project Lyme, discuss their personal battles with Lyme disease and their roles in advocacy. Their stories not only highlight the harsh realities of living with Lyme but also offer hope and guidance for others on similar paths.
Advocacy
02/27/2025
Lyme Advocates Join Together To Request Federal Funds
The 5th annual Lyme Fly-In was held on Wednesday, February 19th. Project Lyme recaps the event by outlining funding requests, as well as sharing quips from congressional reps, staffers, and the events organizers.
Advocacy
01/02/2025
Art Therapy Gallery January 2025
Project Lyme believes in the power of community and storytelling to raise awareness about tick-borne diseases. While sharing your story can be helpful for the general public to better understand your struggle, it can also be a great way to begin the healing process. More specifically, we encourage you to leverage art to convey the deeper meaning words cannot always touch. We have compiled a gallery with several pieces of impactful artistic expression with the hope it will reach outside the community to bring understanding, and inside the community to bring hope and healing.
Advocacy
07/29/2024
Sen. Gillibrand announces plan to fight against Lyme Disease
Yesterday, U.S. Senator Kirsten Gillibrand, alongside Project Lyme, held a press conference at the Quogue Wildlife Refuge to advocate for increased federal funding for Lyme Disease research. Suffolk County had the highest number of Lyme disease cases in the country between 2019 and 2022, and New York was the number one state for reported cases of Lyme disease in 2022. These statistics emphasize the urgent need for increased funding and research to better understand, treat, and ultimately find a cure for this devastating illness.
Advocacy
05/24/2024
How to Be a Lyme Disease Advocate
It’s vital to keep spreading awareness and educating the public about Lyme and other tick-borne illnesses all year round. There are simple but meaningful ways that anyone can advocate for Lyme disease no matter what time of year it is. Read to learn more!
Advocacy
10/24/2023
Why Congress Must Enact Medical Insurance Coverage Laws for Lyme Disease
This article provides an overview of Lyme disease and its prevalence in the United States. Despite scientific evidence showing the infection can persist long after initial treatment, most insurance companies restrict access to treatment beyond twenty-eight days, leaving patients to bear much of the financial burden. Barrett argues that the existing approach to addressing Lyme disease is insufficient; therefore, Congress must enact legislation to change this.