Connect with Lyme

Science

09/23/2021

Lyme Disease and Neurofeedback

Dr. Roseann Capanna-Hodge is an author, therapist, psychologist, board-certified neurofeedback provider, and media personality who has been in/on hundreds of television shows, podcasts, and major publications. Through her Ridgefield, CT center, she works with people all over the world providing neurofeedback in person and in-home neurofeedback virtually. She is highly regarded in the field and due to her level of expertise in Lyme and PANS/PANDAS.

Advocacy

09/20/2021

TBDWG: Call for Public Comment

The U.S. Department of Health and Human Services recently unveiled the new members of the 2021-2022 Tick-Borne Disease Working Group (TBDWG). So, what can we expect this term? Project Lyme interviewed the co-chairs, Holiday Goodreau, Executive Director of the LivLyme Foundation, and Dr. Linden Hu, Professor of Microbiology and Medicine at Tufts University, to find out. Ms. Goodreau and Dr. Hu generously shared their perspectives and goals to improve tick-borne disease patient care in our new blog post.

In the Media

09/17/2021

What Lurks in the Woods

Life was going well for Nicole Bell and her husband Russ, both successful engineers and entrepreneurs… until Russ started experiencing symptoms of cognitive decline. They visited doctor after doctor and were told it was Alzheimer’s disease, but the root cause turned out to be something they never expected—tick-borne disease. In her soon-to-be-released memoir What Lurks in the Woods (October 2021), Nicole describes her harrowing investigation into her husband’s mysterious illness in hopes that it will help others who are dealing with bizarre chronic symptoms to find the cause before it’s too late. Nicole graciously sat down for a (virtual) interview with Project Lyme about her book and her heartfelt message to the chronic illness community.

Science

09/14/2021

Cardiopulmonary Exercise Testing for Determining Disability in Lyme Disease

Determining eligibility for disability insurance claims can be an extremely hard task, especially when insurance companies are incentivized not to pay. Cardiopulmonary exercise testing (CPET), specifically 2-day CPET, is a possible answer for patients to scientifically showcase how fatigue impacts their ability to work. If you need help solidifying your claims, this blog may contain the answers you are seeking.

Education

08/31/2021

LYME WATCH: “Lyme Disease: What You Need to Know”

In the second installation of LYME WATCH, Jason Teich and Davia Sills address missteps of information in the media. Lyme disease is constantly downplayed in terms of where you can get it, and how quickly you can get it. Additionally, tests are still suspect and so are treatment protocols assigned by certain non-governmental organizations such as the IDSA. The more you know about misinterpreted information, the better you will be able to protect yourself.