On Monday, December 15, 2025, the U.S. Department of Health and Human Services (HHS) hosted an official roundtable on one of the most complex and under-recognized public health challenges in the United States: Lyme disease.
Project Lyme was represented in Washington, DC, at the HHS Lyme Disease Roundtable: “Invisible Illness — Leading the Way with Lyme Disease,” an event bringing together federal leadership, Members of Congress, clinicians, researchers, innovators, and patient advocates for a focused discussion on advancing Lyme disease science and care.
The roundtable was convened by HHS Secretary Robert F. Kennedy Jr., alongside key HHS leadership, and focused on critical priorities that directly impact patients and families affected by Lyme disease and related chronic conditions. Topics of discussion included:
The conversation also emphasized empowering researchers, increasing transparency, and ensuring patients are active partners in shaping solutions, a core value that aligns closely with Project Lyme’s mission.
“Lyme disease affects millions of Americans across all 50 states, yet patients often face delayed diagnosis, fragmented care, and limited access to evidence-based solutions. Federal engagement at this level represents an important opportunity to bring scientific rigor, innovation, and patient experience into a shared conversation about what progress can, and should, look like,” says Ali Moresco, Board Chair of Project Lyme and Founder of Moresco Public Relations.
“Project Lyme’s presence at this roundtable reflects our ongoing commitment to advancing gold-standard medical science, supporting researchers and clinicians, and elevating patient voices in spaces where policy, funding, and national priorities are shaped,” explains Michelle Cuevas, Executive Director of Project Lyme.
This event was broadcast live and is available on the HHS YouTube channel here. We encourage members of the Project Lyme community, partners, and supporters to watch and share access to the discussion.
Project Lyme will continue to engage with researchers, clinicians, policymakers, and patient communities to ensure that scientific advancement and patient-centered solutions remain at the forefront of national conversations on Lyme disease.
We are encouraged by the opportunity to participate in this dialogue and remain committed to supporting efforts that move the field forward, for patients today and for generations to come.
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For many Lyme survivors, the journey to diagnosis and healing is isolating, disorienting, and devastating. But for Ali Moresco, that journey eventually became a platform for impact through strategic advocacy, community building, and her groundbreaking work in patient-centered healthcare communications.
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