From the latest headlines to community events, keep your finger on the pulse of the Lyme world. Learn about groundbreaking research and what’s new in patient advocacy. Stay informed to make the best possible health decisions for yourself and the people you care about.
Advocacy
06/23/2021
Center for Lyme Action hosted their 2nd major event of the year. Featuring Congressional Representatives, Federal employees and renowned scientists, CLA educated the public about major issues and raised awareness about the growing prevalence of tick borne disease. This blog pulls key takeaways from the event and focuses on answering the central question: Is Lyme Disease the First Epidemic of Climate Change?
Education
06/21/2021
Gus Thalasinos describes the genesis of the Lyme Persists initiative, and showcases why is it imperative to educate yourself once becoming sick. He talks about one of the biggest problems facing patients, which is that many people still doubt Lyme can be chronic, doctors included. This is why he combed through a literal mountain of legitimate, peer- reviewed studies out there supporting it to set things straight. Learn more about his story and what made him want to work with Project Lyme to make a difference with Lyme Persists.
Science
06/14/2021
Have you heard of a condition called autoimmune encephalitis or “brain on fire”? It’s a swelling of the brain that can present with severe physical and mental symptoms, and it can be caused by tick-borne pathogens, including bartonella and mycoplasma. Dr. Dan Kinderlehrer recently conducted a study of 10 randomly selected adolescent patients with psychiatric symptoms so severe that they couldn’t function at school or at home to see if there was a correlation with tick-borne diseases.
Education
06/11/2021
Like many chronic illnesses, persistent Lyme disease can wreak havoc on your hormones, resulting in loss of libido and sexual dysfunction, among other painful symptoms. This can strain relationships just at a time when partners need each other’s support the most. Dr. Joseph Trunzo, a psychologist and the author of Living Beyond Lyme: Reclaim Your Life from Lyme Disease and Chronic Illness (Changemakers Books, 2018), spoke with Project Lyme about how individuals can preserve intimacy in their relationship while coping with Lyme disease or chronic illness.
In the Media
06/09/2021
“When I became severely ill in 2010, it took ten doctors and multiple false negative test results before being diagnosed with Lyme disease and the co-infection babesia,” said New York advocate and Project Lyme Executive Committee Chairman David Roth. “There are enormous gaps in our understanding of the pathology of these diseases and their treatment, and there is a tremendous need for better diagnostic tests. I want to thank Senator Gillibrand for her leadership on this issue and for consistently fighting for increased funding for research of these diseases.”
Science
06/02/2021
Dr. Dan Kinderlehrer leverages patient case studies to examine why Lyme disease can cause mental illness, specifically eating disorders. With anorexia nervosa becoming increasingly common, it is important to understand the warning signs and take action.
Science
05/21/2021
Hyperbaric medicine (HBOT) presents an unparalleled approach to Lyme disease that traditional therapies do not. Learn more about how it is used to treat Lyme in this blog by Dr. Alvarez of Aviv Clinics, a physician with over 35 years of experience in internal medicine and surgery.
Science
05/19/2021
Dr. Dan Kinderlehrer is a physician and board-certified internist specializing in treating Lyme patients. In this introductory blog he leverages a patient case study and years of personal experience to explain the harmful nature of Lyme disease's neuropsychiatric symptoms on people's lives.
Education
05/09/2021
Mother’s Day can be a time to reflect on the mothers who nurture children with Lyme. While the following material, about the rare form of child abuse known as Munchausen’s Syndrome by Proxy, is disturbing in nature, we present it with the hopes of raising awareness for mothers, families, and the entire Project Lyme community.