News & Blogs

From the latest headlines to community events, keep your finger on the pulse of the Lyme world. Learn about groundbreaking research and what’s new in patient advocacy. Stay informed to make the best possible health decisions for yourself and the people you care about.

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06/07/2023

Jacksonville Lyme disease patients say they had to ask a dozen times for a test

There is a history of misdiagnosis and underdiagnosis of tick-borne diseases across the country, but especially in Florida. Dr. Kerry Clark of UNF states that tests are not sensitive enough and cases are getting missed. In addition to testing issues, doctors in Florida don't consider tick-borne disease as a part of their clinical evaluation, leading one woman to a dozen different doctors before figuring out what was wrong with her child. Project Lyme board member Melissa Bell joined ABC News Jacksonville on Wednesday morning to support these claims with her own son's story of misdiagnosis and illness

Science

06/02/2023

How Does Lyme Disease Affect Your Hormones?

Lyme disease has the potential to impact nearly every single system in our body including our brain, gut, endocrine system, nervous system, reproductive system, and cardiovascular system. This is why it can lead to such widespread symptoms that can vary from person to person. One of the major impacts it can have is on your endocrine system, which can impact thyroid function, adrenal function, and overall hormonal balance in the body. Dr. Izabella Wentz, author of Adrenal Transformation Protocol, addresses these issues and how to solve them.

Education

05/30/2023

What Does AI Know About Lyme Disease

The arrival of ChatGPT, Google Bard, and other artificial intelligence (AI) chatbots has sparked a flurry of interest and concern, particularly in the field of healthcare. As many in the tick-borne disease community know, there is a lot of information floating around the Internet about Lyme disease and other tick-borne infections—and not all of it is accurate or helpful. So will today’s AI chatbots help clear up common misconceptions, or will they perpetuate misinformation that leads many people with Lyme and other tick-borne illnesses to stay sicker longer?

In the Media

05/18/2023

Passing Down Lyme Disease

Isabel Rose's article on congenital Lyme disease featured in the East Hampton Star.

Advocacy

05/17/2023

Who’s Your Lyme Hero?

For Lyme Disease Awareness Month, Project Lyme asked our community to honor those Lyme and tick-borne disease doctors who are committed to helping patients recover, sometimes putting their own reputations at risk in the process. This blog answers the question, who is your Lyme hero?

Education

05/09/2023

Lyme Disease Symptoms, Treatments, and Prevention | Backpacker Radio Episode #200

Project Lyme recently joined Backpacker Radio to discuss all things deer ticks and Lyme disease.

Education

04/18/2023

Medical Gaslighting – The Lyme Patient’s Experience

Project Lyme recently chatted with Ashley Baker to get a patient’s perspective on medical gaslighting. Ashley is a passionate artist, Lyme disease advocate, member of Project Lyme’s Junior Board, and also one of the stories featured in the new Lyme documentary I’m Not Crazy, I’m Sick.

Education

04/03/2023

Isabel Rose – Author, Advocate, and Mother

Isabel Rose is a recording artist, author, and mother whose personal experiences with Lyme disease have motivated her to become an advocate for tick-borne disease awareness and education. She has been a Board Member of Project Lyme since 2019. Currently, Isabel runs Mothers Against Lyme, an initiative of Project Lyme, which offers support groups for mothers in need with a focus on congenital and pediatric Lyme disease.

Education

03/14/2023

Delayed Diagnosis: The Cost of Missing Lyme Disease

At 17 years old, Grace Burns started having episodes where her legs grew numb and she lost consciousness. She developed other symptoms, including fevers, arthritis, migraines, nausea, nerve and muscle problems, and brain fog. After 3 years of seeing many doctors who told her that her symptoms were “just in her head,” Grace finally saw Lyme expert Dr. Steven Phillips, who diagnosed her with neurological Lyme disease plus co-infections. Now on her path to recovery, she is spreading awareness about the delay in answers and why the medical system needs to change.

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