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Shine A Light On Lyme: Chicago Cocktail Fundraiser May 02, 2024

News & Blogs

From the latest headlines to community events, keep your finger on the pulse of the Lyme world. Learn about groundbreaking research and what’s new in patient advocacy. Stay informed to make the best possible health decisions for yourself and the people you care about.

News & Updates



Lyme Persists: A Resource for the Community

Gus Thalasinos describes the genesis of the Lyme Persists initiative, and showcases why is it imperative to educate yourself once becoming sick. He talks about one of the biggest problems facing patients, which is that many people still doubt Lyme can be chronic, doctors included. This is why he combed through a literal mountain of legitimate, peer- reviewed studies out there supporting it to set things straight. Learn more about his story and what made him want to work with Project Lyme to make a difference with Lyme Persists.



Lyme Disease, Kids and Mental Illness: Are Tick-borne Infections Contributing to the Epidemic in Mental Illness?

Have you heard of a condition called autoimmune encephalitis or “brain on fire”? It’s a swelling of the brain that can present with severe physical and mental symptoms, and it can be caused by tick-borne pathogens, including bartonella and mycoplasma. Dr. Dan Kinderlehrer recently conducted a study of 10 randomly selected adolescent patients with psychiatric symptoms so severe that they couldn’t function at school or at home to see if there was a correlation with tick-borne diseases.



How to Reclaim Intimacy When You’re Chronically Sick

Like many chronic illnesses, persistent Lyme disease can wreak havoc on your hormones, resulting in loss of libido and sexual dysfunction, among other painful symptoms. This can strain relationships just at a time when partners need each other’s support the most. Dr. Joseph Trunzo, a psychologist and the author of Living Beyond Lyme: Reclaim Your Life from Lyme Disease and Chronic Illness (Changemakers Books, 2018), spoke with Project Lyme about how individuals can preserve intimacy in their relationship while coping with Lyme disease or chronic illness.

In the Media


Gillibrand Pushes For Increased Funding For Lyme Disease And Tick-Borne Illness Research

“When I became severely ill in 2010, it took ten doctors and multiple false negative test results before being diagnosed with Lyme disease and the co-infection babesia,” said New York advocate and Project Lyme Executive Committee Chairman David Roth. “There are enormous gaps in our understanding of the pathology of these diseases and their treatment, and there is a tremendous need for better diagnostic tests. I want to thank Senator Gillibrand for her leadership on this issue and for consistently fighting for increased funding for research of these diseases.”