Project Lyme seeks to raise awareness of Lyme disease and the challenges patients face on World Lyme Day.
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Project Lyme, a 501(c)3 focused on eradicating the epidemic of tick-borne diseases, is pleased to announce that on May 1st, 2021, the Helmsley Building, a 35-story structure at 230 Park Avenue between East 45th and 46th streets in Midtown Manhattan will light green in honor of World Lyme Day.
“I am extremely excited and thankful to RXR Realty for accepting our application. This day is so important to the millions of people affected by Lyme disease” said Noah Johnston, Administrative Director of Project Lyme. “Our mission is to eradicate the epidemic of tick-borne diseases through awareness and education, support of cutting-edge science, and advocacy for solutions to end the suffering. Our hope is that the sheer scale of the Helmsley shining green for all to see will raise awareness of the realities of the disease and the struggles of patients, as well as increase consciousness to ensure people educate themselves on the proper steps to prevent transmission”.
With the CDC recently updating its surveillance data, there is now clear evidence that Lyme disease has been significantly underreported for years. The most accurate number based on insurance claims is that 476,000 people are diagnosed with Lyme disease every year.
“This building lighting is a dream come true. It signifies to the 8 million residents of New York City — and millions of people around the world who will see photos of the lighting on social media — that Lyme disease patients are all around us. They are our friends, family, and neighbors, and they need our help,” said Brooke Stoddard, board member at Project Lyme and founder of the Generation Lyme initiative. “The lighting has the potential to educate anyone who is less familiar with Lyme and other tick-borne diseases.”
For those interested in viewing the lighting in person, you can find the Helmsley Building located at 230 Park Ave, New York, NY 10169. This event is free to the public. Due to the COVID-19 pandemic, there will be no official gathering location.
Our marketing team will be on location to capture this moment for the Lyme community and will upload them following the night of the event.
December 23, 2024
MAL meet-ups occur a couple of times a month and are geared towards mothers raising children with Lyme, or mothers with Lyme themselves. It serves as a support group where you will discuss a common theme each meeting, share stories of your own struggle caused by Lyme, as well as hear advice from other mothers going through the same things as you. Join us by registering through the webpage!
November 20, 2024
The goal of this webinar is to teach patients how to effectively advocate for change on the Federal, State, and local levels of government. Our presenters will discuss multiple topics including but not limited to: ways to engage with political representatives through letter writing, proclamation requests, how to participate in the upcoming Center for Lyme Action Fly-In and how to advocate for change hyper-locally, such as planning 5k's, social media fundraisers.
November 19, 2024
Illness invalidation, by medical professionals or others, is a common experience for patients with Lyme disease. This talk will discuss recent scientific articles in Lyme and other illnesses about the patient effects of invalidation. It will also discuss the gendered history of invalidation and how it influences the medical encounter today.
