Advocacy
12/17/2025
Project Lyme was represented in Washington, DC, at the HHS Lyme Disease Roundtable: "Invisible Illness — Leading the Way with Lyme Disease," an event bringing together federal leadership, Members of Congress, clinicians, researchers, innovators, and patient advocates for a focused discussion on advancing Lyme disease science and care.
Education
11/03/2025
Alpha-gal syndrome (AGS) is a severe, life-threatening allergy that can develop after a tick bite. There are an estimated 450,000 people suffering from alpha-gal syndrome in the United States.
Advocacy
07/01/2025
For many Lyme survivors, the journey to diagnosis and healing is isolating, disorienting, and devastating. But for Ali Moresco, that journey eventually became a platform for impact through strategic advocacy, community building, and her groundbreaking work in patient-centered healthcare communications.
Education
05/29/2025
The ever-present question those with tick-borne illness get asked by healthy friends, family, and acquaintances is: “Why is it so hard to treat?” The answer is layered, but one aspect of that answer lies within the very early stages of the disease: getting tested.
Advocacy
05/01/2025
Advocacy
05/01/2025
In the Media
03/24/2025
Sarah Bolden organized Lyme-A-Palooza in partnership with Project Lyme, a nonprofit dedicated to eradicating tick-borne diseases through awareness and education. Lyme-A-Palooza debuted in Mount Pleasant on Saturday outside at Mainland Container Co. Kitchen and Bar. The inaugural event featured live music, food, vendors, and educational booths.
Advocacy
03/19/2025
Growing up in Ocala, Florida, Kolten started playing baseball when he was just five years old and never looked back. But beyond baseball, there’s another battle that has deeply affected his family—one that has nothing to do with sports and everything to do with health. Kolten’s mom, Bonnie, has been fighting Lyme disease since he was in middle school. Before she got sick, neither of them had even heard of Lyme disease. That all changed when she started experiencing severe symptoms that no one could seem to explain.
Advocacy
03/11/2025
In a recent episode of the Love, Hope, Lyme podcast, Ashley Baker and Maria Johnson, members of the Emerging Leaders Board for Project Lyme, discuss their personal battles with Lyme disease and their roles in advocacy. Their stories not only highlight the harsh realities of living with Lyme but also offer hope and guidance for others on similar paths.