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LYME GALA 2018 RAISES $1.5 MILLION

The inaugural Lyme Gala 2018 was a moving evening, filled with touching stories and hope for a future without Lyme disease.

The event was a rousing success and we are thrilled to share we raised approximately $1.5 million!  The proceeds from the gala benefit both Project Lyme and Bay Area Lyme Foundation’s critical education, awareness, science and research to end the Lyme disease epidemic!

Thank you to our honoree, Bill Ford, keynote speaker, Dr. Neil Spector, singer/songwriter, Dana Parish, The Janes, and the tireless efforts of our co-chairs, gala committee, advisory members, Board of Directors and everyone who attended this special night.

There is lots of exciting work ahead! We are excited to keep you updated regarding our upcoming plans, accomplishments and the impact your gala gift is making in the fight against Lyme. Until then, thank you so much to those who made Lyme Gala 2018 a success.

You can learn more about how to stay safe from, or what do if you think you may have, Lyme disease at Project Lyme at www.projectlyme.org and Bay Area Lyme Foundation at https://www.bayarealyme.org/.

 

 

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Tick-Borne Disease Working Group Calls for More Resources for Research, Prevention, Diagnostics and Treatment

“The Tick-Borne Disease Working Group, a federal advisory committee established by Congress in the 21st Century Cures Act, issued its first report today. The report recommends a multi-pronged response to address these diseases that affect more than 300,000 Americans each year.

Top recommendations included increases in federal resources to meet urgent research and patient care needs, such as enhanced surveillance, prevention, diagnostic and treatment options. The Working Group identified the following priorities:

  • Improve early and accurate diagnosis and treatment.
  • Strengthen national surveillance.
  • Understand immunological mechanism (for example, pathogen-host interaction) of immune protection for Lyme disease and other tick-borne diseases.
  • Develop new rapid and accurate lab tests.
  • Develop antibiotic combination and/or therapeutic options for treating acute and persistent illness.
  • Encourage the development of strategic plans for tick-borne disease federal investments.
  • Dedicate funding to tick-borne diseases and evaluate related activities using performance indicators and clear metrics for success.
  • Characterize how tick-borne disease affects U.S. national security, military readiness, and the health and wellness of active duty service members, veterans and their families.”

ASH Press Office. “Tick-Borne Disease Working Group Calls for More Resources for Research, Prevention, Diagnostics and Treatment.” U.S. Department of Health & Human Services

Source: U.S. Department of Health & Human Services

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Man with fever, chills and aches in the midst of a flu outbreak turns out to be a very different kind of infection.

“Gabriel Vilchez, the infectious-disease specialist in training, reviewed the chart and examined the patient. He thought that the patient most likely had a tick-borne infection. The hospital had sent off blood to test for the usual suspects in the Northeast: Lyme, babesiosis, ehrlichiosis and anaplasmosis. Except for the Lyme test, which was negative, none of the results had come back yet. Vilchez considered that given the patient’s symptoms — and his response to the doxycycline — it would turn out that he’d have one of them.

And yet, the results for tick-borne infections were negative. Vilchez thought about other tick-borne diseases that are not on the usual panel. The most likely was Rocky Mountain spotted fever (R.M.S.F.). The name is a misnomer: R.M.S.F. is much more common in the Smoky Mountains than the Rocky Mountains, and the spotted-fever part, the rash, is not seen in all cases. It’s unusual to acquire the infection in Connecticut but not unheard-of. Vilchez sent off blood to be tested for R.M.S.F. The following day, the patient felt well enough to go home. A couple of days later, he got a call. He had Rocky Mountain spotted fever.”

Sanders, Lisa M.D. “All His Symptoms Pointed Toward the Flu. But the Test Was Negative.” The New York Times Magazine

Source: New York Times Magazine

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New techniques can detect lyme disease weeks before current tests

“The new tests that directly detect the Lyme agent’s DNA are more exact and are not susceptible to the same false-positive results a3nd uncertainties associated with current FDA-approved indirect tests,” said Schutzer. “It will not be surprising to see direct tests for Lyme disease join the growing list of FDA-approved direct tests for other bacterial, fungal and viral infections that include Staphylococcus, Streptococcus, Candida, influenza, HIV, herpes and hepatitis, among others.”

Source: Science Daily

Direct Diagnostic Tests for Lyme Disease

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Thousands of ticks swarmed a New Jersey woman

Thousands of ticks swarmed a New Jersey woman

The foreign and invasive longhorned tick turned up on a sheep in New Jersey last fall.

Source: NJ.com

 

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Lyme disease-carrying ticks spreading to new areas, scientists warn

Lyme disease-carrying ticks spreading to new areas, scientists warn

The blacklegged tick, which transmits Lyme disease, was identified for the first time in 76 counties in 24 states, a new study by the Bay Area Lyme Foundation found.

Source: NBC News

 

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Lyme Disease in PA: The Danger Lurking in Your Back Yard – A PennWatch Video

Lyme Disease in PA: The Danger Lurking in Your Back Yard

Lyme and Tick-Borne Disease cases in Pennsylvania are soaring. From 2000-2016, the total confirmed Lyme Disease cases have reached more than 83,000. According to the tick testing site TickCheck.com, the CDC’s data only represents confirmed cases, therefore it is very probable that the actual quantity of Lyme Disease cases may be closer to more than 764,000 true cases in Pennsylvania.

How can you prevent a tick bite? Start by looking right in your own backyard.  Flora Posteraro has the story.

Source: Penn Watch

 

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